Let's change the benefits system

Individuals and families living with muscle-wasting conditions face additional expenses every day. Getting the right financial support is vital as it helps people meet the extra costs of living with their condition.

From our survey of 592 people, we know that people living with a muscle-wasting condition are experiencing problems with the benefits application, assessment and appeals process, leaving them struggling to get the support they are entitled to. This has an impact on their mental health, quality of life and independence.

Help us take action to address the challenges faced by people trying to access the support they are entitled to by sharing our report with your MP.